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Saturday, April 18, 2009

Video Post in the Future Possibly?

I see a lot of video blog posts and I admit I like them. I like seeing who it is that is typing out the messages that I read all the time. I think it's a pretty creative idea. I thought maybe some day I'll get Gabbi and make a video of us together. She is obviously adorable and the cutest baby on the planet. (hee hee) I did post a video of her once on here. She was giggling and laughing then hit herself unexpectedly in the head with a toy. The latest cute thing she does is sing the chorus to Spongebob Squarepants. I am your typical doting mother who cannot get enough of it or getting her to do it for anyone who will listen. I sing the main verses and right on cue she sings "Bob bob bob bob" It isn't exactly how it goes, but it IS to the right tune!! haha It's adorable and she gets the shoulders in on it and the head starts bobbing up and down as well. If she is standing up you might get a little hip action too. Our kids do such cute things and of course every mom thinks their kid is the cutest!

I am in some ways SO eager for my follow up appointment on May 8 because I know that the nurses and my doc will just go crazy over her. She is a medical miracle and they all treat her as such. They say "It's the miracle baby" when we go in. They all know her by that. I love every single second of it.

Wednesday, April 15, 2009

CAT Scan/ECHO Follow Up Official, Date Set

I talked to my oncologist's head nurse yesterday. We had to make it so my CAT scan, ECHO and regular follow up were all on the same day. I love my doc and wouldn't want to go anywhere else. We moved though after the baby was born back around family so now my doc is almost 4 hours away. It's worth seeing him since I go just once every 3 months. I am comfortable with him and with the nurses there. They are like family having watched me go from a bag of bones in the beginning to a nice round pregnant lady at the end. Of course they saw Gabbi after she was born. Now when we go in there they like to take her from me and then they all walk around showing her off to other nurses, even patients and she makes everyone smile. She waves and is so full of happiness. The TV station had interviewed my oncologist for my news interview too, so we are all kind of mini celebrities there. It's just such a nice, warm and comforting atmosphere.

Back on topic here, my appointments were rescheduled from April 22th to May 8th. We had to do this since the doctor was going to be out that day and really we need our appointments for Friday so that the kids don't miss a lot of school. It's such a long drive there and back. The day will be a long one. We start with the ECHO at 11 a.m., the CAT scan following immediately at 12:00 p.m. and then I see my oncologist at 2:00 p.m. I am pretty anxious. I haven't had any scans since the last PET scan that was clear. On paperwork I am great. I want to maybe see why I still have occasional pressure in my neck/throat. I hate it and I suppose it may just be something I need to get used to. I hope it's just the thyroid though and it can be taken care of. It's minor and comes and goes but the pressure is there. Now I have to try and NOT stress too much before May 8th!! I am nervous and anxious but at the same time so happy because I am really thinking it could be the peace of mind I need.

Not only this but on May 1st the college of nursing I applied to is selecting the students that are accepted that day! I am so anxious! I hope I get in and I also hope I find out that week at least who got accepted. They take 90 students per semester. Wish me luck!

Now ending on a funny note. My 9 year old just interrupted this post to ask me if I ever snuck my cell phone to school in my pocket as a kid and I had the displeasure of telling her cellphones did not exist when I was a little girl. All she could repeatedly say was "Oh my gosh. I had no idea they didn't exist. That's just.....weird!"

Ha!

*sigh*

Tuesday, April 14, 2009

Sad News Today

My sister in law told me a few weeks ago that her sister was diagnosed with Leukemia. She was given an 87% survival rate according to what I read on her blog post. She came down suddenly ill today and sadly passed away this morning. It's pretty unexpected and I know my sister in law is taking it very hard of course. I'd like to dedicate this post to her sister. I want to just remember her here, though I didn't know her. It's so hard when cancer takes a life. It's so wrong and sudden. She was just 42. I'd also like to just extend my condolences to my sister in law Rachel right here on my blog and want others to feel free to do the same.

It's a Small (Internet) World After All

It was a good Easter weekend minus one of the kiddos getting sicking literally minutes before my guests arrived. She threw up all over her bedroom floor. It was too late to call things off and so we quarantined her. It only lasted about 24 hours and she felt better. She was well taken care of but I felt so horrible that she didn't get to visit with her favorite cousin while he was here. Now this morning my 6 year old woke up with tummy pains. So, I guess it could be making it's rounds. If so, this is just the beginning. Or hopefully she is just faking it because she's not ready for her spring break to end quite yet.

Another exciting thing happened over the weekend. I received an e-mail from a woman who has been through what I have been through. She was diagnosed with NHL at 17 weeks pregnant. She is starting a website complete with forums designated to being pregnant with cancer. This diagnosis is a shocking and terrifying one. No one wants to believe that cancer and pregnancy can happen together, much less that you might just have to have treatment during it. It's a time when you feel very alone even with all your family and friends around you....because you need someone who knows, who has been there. A support group is so important. We find each other out here. Our stories seem so unique yet there are others out there.

This woman and I have so much in common too. I was reading her blog and read how she had shortness of breath, wheezing, crackling in the chest and the docs prescribed her asthma medications. Not only that but both of us got winded walking up a few stairs, bending over, picking things up yet we both convinced ourselves we were fine! How in the world did we do that? haha I couldn't believe all the similarities! I am so anxious to help start out this message board. I will post more here when it's all up and ready to go. I am sure it will be open to anyone willing to lend support and comfort to women going through this as well. I know that is so important to have a strong support system to make it through this. I hope when someone finds out they are going through this that because of our experiences another woman won't have to feel so scared.