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Friday, March 27, 2009

Sometimes Absent Minded and Chemo Fog



I sometimes get awards or tags, which I love but don't have time to do them at that precise moment. So I save the notice I get in my e-mail of the comment it came in. I do this several times and guess what? They are lost in a sea of e-mails. Well I got a tag recently that I did want to do. It was the handwriting one. I cannot remember who sent it! If it was you, let me know. I think this one was particularly fun. I do get absent minded sometimes.

I read about something called "chemo fog or chemo brain". I have no idea if it's really true or not but sometimes I do wonder if the fact that I find it easy to just forget things might not be a prolonged side effect of the chemo. Then again, I just like to have something to blame it on! I don't think the hubby is falling for it.


More on Chemo Fog later....

The Confusion With Doctors Appointments and Thieving Credit Card Companies

It's confusing because not everything I have to get done is with the same doctor! I was scheduled for my regular follow up with my regular doctor. OK. That seems easy enough but then he also scheduled me for a CAT scan and an ECHO. Each of those were with other doctors. So when they called to reschedule my appointment I just assumed the date was rescheduled no trouble. Now that I sit here and ponder it, the more I realize they probably just changed my oncology appointment and not the tests. So I am going to have to call today. I also need to call my credit card company. You wouldn't believe (or maybe you would) what they are doing to me. I paid them with a cashier's check. They are saying they didn't get it yet I have the cashed copy of the check. My bank found it and has given it to us and we faxed copies of all the paperwork to them. I have called them. I cannot understand anyone I talk to. I am terrible understanding accents. It's a flaw in myself but knowing that does me no good. I am forwarded from person to person to person on the phone that I can not understand. Then they hung up on me! So I keep e-mailing them from my online account and there only response is that I need to call!

Thursday, March 26, 2009

How Rare Is It Really?

According to www.cancer.gov there were about 8,220 cases of Hodgkin's Diagnosed in 2008. Of those 1,350 died. That's so scary to me because while most did NOT die, there were still well over 1,000 that did. It's terrifying but this is cancer. Hodgkin's is definitely rare. Compare 8,220 new cases in the USA last year to 182,460 new cases of breast cancer in 2008. There were 40,480 deaths. Now think of the risks of Hodgkin's in Pregnancy. So very low. I have read the risk of cancer in pregnancy is around 1 in 1000. This is cancer in general during pregnancy. My guess is it's much lower for Hodgkin's. Here is the ironic thing. Not only was I paired up with a woman who had Hodgkin's during her pregnancy through the Pregnant With Cancer Network but I have since found through blogging and Facebook two more women who had the same thing happen. One of them is healthy and well like myself and the other is currently undergoing a stem cell transplant. I have kept up with her procedures through Facebook but you cannot help but ask yourself why? Why is she having such trouble? I pray for her full recovery and that this transplant will cure her eventually. It's hard but honestly if you do the research on this you'll see it happens more often than you think. Oh and both women's babies were born healthy!

Yet I was still a very rare case having had chemo in the first trimester. Ask any specialist, doctor, oncologist, OB/GYN and I am willing to bet they have met not one patient who ever had chemo in the first trimester. I am willing to bet they would believe it could not be done. Yet it can be done and my Gabriella is living proof.

Speaking of which, she slept great last night. I do know she has GERD but it never used to wake her up so much. Then I realized another molar is poking through so I am thinking it could have been teething waking her up. I gave her some Motrin last night and she slept like a baby! haha Whoever invented that phrase never had a baby!

Wednesday, March 25, 2009

Being the Caregiver

I know while I was sick it was really hard on my husband. At that particular time it was hard for me to understand just how hard. I was sick and feeling the pain. I couldn't breathe and my thoughts were literally consumed by it. After I began to get better I suddenly realized just how hard it is to be the caregiver. I cannot imagine the worry and fear going through the mind of someone who thinks they may lose their spouse. He compared it to that of one of my children. He asked how worried I was about them when they get sick and then asked now how much do you think I worried about you? Well I think that was really what made it hit home for me. You see, I never thought of myself as someone who needed care or protecting. I never felt like I needed to be kept safe. I have always taken care of the kids and the home. I didn't need anyone to take care of me. Suddenly I needed someone to do everything for me. He encouraged me to eat and gave me pep talks pretty much daily. I have written about it before but it really is something you never forget. I think about it sometimes. I think about it at moments like this picture I snapped last night. Hubby dozed off on the couch while holding Gabbi and she dozed too. I grabbed my cell phone and snapped this as quick as I could. It means so much more to me than a dad and baby sleeping but rather our little miracle baby and how he nursed me back to health and helped me through the cancer to get her here.

Tuesday, March 24, 2009

Removed the No Follow Code on My Blog and Silent Reflux

I have wondered about it for ages but was afraid of messing up anything on my template. After much reading and research I realized it was actually pretty easy. Not only that but I added a top commenters widget! From what I gather it spreads the linky love. I love my readers and commenters so here is my way of paying you back. So, leave me comments. It does make my day to read them.

I received a comment on my last post about Silent Reflux and I am just positive that is what Gabriella has and always has. It can cause a certain spasm that I think she gets only rarely but it does happen. I am trying to remember how to spell this. Laryngospams? I am reading this and I think this is what on occasion happens when this reflux creeps up on her. It seems like Zantac is the way to go. We are starting with this and I need to make some changes food wise. She has the milk allergy which I hear can go hand in hand with reflux. So I am just going to really study the things that make it worse because I hate reflux! I cannot imagine dealing it with like she does. The soy milk she drinks absolutely makes it worse than anything else she eats. So I have been seriously cutting back on that. Otherwise we'll see how it goes. I appreciate the comments and I am so glad that now I really feel like I can help Gabriella and hopefully she'll outgrow this reflux soon.